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Post by moderator on Aug 22, 2018 22:24:25 GMT
If anyone has any suggestions or comments or advice, please write them here by Saturday so we know in advance before moving to new URL. Thanks.
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Post by moreattention333 on Aug 23, 2018 1:46:01 GMT
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Post by lior30 on Aug 23, 2018 5:35:25 GMT
What is NIH?
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Post by moreattention333 on Aug 23, 2018 6:16:57 GMT
NIH = National Institutes of Health. they can do manything about the disease.
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Post by lior30 on Aug 23, 2018 14:42:14 GMT
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Post by Wow on Aug 23, 2018 14:51:03 GMT
Didn’t think it was possible for someone to create a worse forum than the last one. My suggestion for starters is keeping Omar out of any moderation. He’s gone on a goose chase since the beginning and is going to be very off putting to anybody new showing up. This needs to be an accepting group. This disease has made us all crazy and post wierd shit. I’m sure one of you will delete this to control your narrative with this. Luckily I can just keep posting.
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Post by old member on Aug 23, 2018 23:41:08 GMT
Hi, I'm a member of the old forum. How is the search for the unknown virus? Has anyone donated blood?
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Post by Oldmember2 on Aug 24, 2018 3:27:09 GMT
What do you mean with donated blood? Like donation to the Red Cross or donation at a doctor / lab for research?
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Post by moreattention333 on Aug 24, 2018 5:56:27 GMT
What do you mean with donated blood? Like donation to the Red Cross or donation at a doctor / lab for research? for research ,virus study.
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Post by wheretolook on Aug 24, 2018 6:43:43 GMT
I feel your pain. I have all those symptoms with my family. Omg the folliculitis never goes away !. I can tell every few months a new symptoms shows up either pain or sensitivity. A lot of stomach problems and instability.
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Post by moderator on Aug 24, 2018 12:06:11 GMT
Omar has decided to leave his moderator responsibilities, he is staying as a forum administrator for this and the new forum and hopefully he will continue contributing as he did and still does.
Easy to bash the forum and criticize mods from behind anonymous accounts, what good have these anonymous bashers have personally done "since the beginning" will forever remain a mystery... Omar might have his style, but the amount of work he did in investigating this thing with reaching out to world-renowned ID specialists, CFS specialists, other communities and patients and testing treatment over the years is above and beyond what many of us have done or will do.
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Post by moderator on Aug 24, 2018 12:06:42 GMT
New forum rules. The only intent of introducing these rules is to keep forum clean and constructive. 1. No spamming 2. No violence 3. No bashing of the forum or forum staff. Criticism or complaints should be posted in Forum feedback thread, forum staff will try addressing them to the best of their abilities. 4. Anonymous posting is allowed, but expect to be under more scrutiny then registered members. 5. Violating rules may result in post deletion, user ban and rules review. 6. Forum rules might change in the future on admin's or mod's decision. Overall - try to be reasonable and responsible in what you say and how you say. We are all in this together and we are all after the same goal, last thing we need is more infighting.
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Post by moderator on Aug 24, 2018 12:16:31 GMT
Posting on this forum will be disabled tomorrow, we are moving to a new URL. Threads will be recreated and information copied over to the best of my ability, your help in copying useful information would be appreciated, but I don't think we will loose anything important. The new URL is unknown-std-id.boards.net it will be accessible from this board for some time.
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Post by moderator on Aug 24, 2018 12:25:44 GMT
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Post by Bon on Aug 24, 2018 19:23:01 GMT
Bon, Sorry, I did not have time to check in for a while. I missed any questions that might have been directed at me and deleted, but it looks like we both know that Omar did not exactly have any genuinely bad intentions with anything he did as a moderator. Where I stand on moderation, and I told this to Omar before we created this board, - it should be limited to deleting spam and stupid comments like threats or suicidal rants. My only intention was to create multiple threads or sections and keep it clean from garbage. The only thing I deleted were =copies= of your post about your new forum. I agree that Omar’s style is not correct if we want to have a healthy discussion. I don't know exactly what happened and I'm not justifying his actions, but we do not have forum rules, so maybe we need some. We could also use another moderator, so if you are not too angry and all, and if you wanted to volunteer yourself would be of some help. Omar, I strongly don't agree with this - "Please don’t post anything more." And I strongly agree with this - "Another best way of handling the posts are "ignoring" them ." I will draft out some basic forum rules, then post them for member review and we should try to stick to them for moderation guidelines. I created yet another forum, this time with a better URL, here it is - unknown-std-id.boards.net. As soon as we settle the rules and recreate the threads we can move there. Finally – if anyone has any better ideas – put them here so I don’t waste my time moving stuff to new URL. Bon, we don’t mind moving to your forum either, except we don’t see a reason to do so now and we also don’t know who you are, so PM me or Omar if you have any questions. I definitely do not want to be monopolizing anything and I know neither does Omar, we just want a clean forum that works since the old one closed down. Sorry if our implementation is not ideal, - if anyone has any other comments or suggestions please write them here uidf.boards.net/thread/11/forum-feedback-thread Moderator, I appreciate your post. I realize everyone is trying to make the best of what was handed us when the other forum closed. Like you I am fairly busy I haven’t checked in for a bit. I just want a place where people can find others in this situation like I did when they have no where else to turn. The biggest hurdle is getting in google search results. I’m not sure how we do that. I will try to contact you when I have more time and will help if I can. Omar, just so you know I appreciate what you are doing. Just try to be mindful that new members are where we once were.
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