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Post by omar2011 on Aug 17, 2018 8:55:03 GMT
Omar... how can you know it gets worse? According to your own messages you also have cfs ... how do you know it isn’t your cfs that gets worse? You have the register to get answers and to provide your story ! I was asked to join the administration of this page which wasn’t made of me and I really don’t care 1% to answer such questions and to waste my time Am here only to help patients from my experience wich was painful , thankfully am doing good on ARV treatment and I can leave and live my life but am here to stand with people who can to be helped but I can see why did the admin closed the old page Because of such people
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Post by omar2011 on Aug 17, 2018 8:56:09 GMT
Unfortunately thats Is true specially after your 5th or 6th year Hey Omar. I know you are greater than 5yrs, can you tell me what kind of issues you have now ? I am feeling better now, occassional mouth ulcers last for a week and goes. According to my naturopath if my stomach & stool is well. there is no issues i am also on same opinion. can you elaborate yours. Provid your story and symptoms development you had and still have please
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Post by omar2011 on Aug 17, 2018 9:06:29 GMT
Most of CFS cases are a result of an unknown infections , some might had known infections and others like us didnt !
As I said before the category of CFS can take us , lyme and some fibromyalgia patients but in the end of the day each one of us knows what does he really have either by the way they caught It and if they are infectious or not after the acute period resolve
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Post by moreattention333 on Aug 17, 2018 12:25:48 GMT
Most of CFS cases are a result of an unknown infections , some might had known infections and others like us didnt ! As I said before the category of CFS can take us , lyme and some fibromyalgia patients but in the end of the day each one of us knows what does he really have either by the way they caught It and if they are infectious or not after the acute period resolve Aperiomics didn't post the rna for now.we have to find another laboratory .did somebody will try to contact one. and omar can you try to find one.we can afford most of your cost. I tried to talk to American Gene Company to letq them recommend a lab.it seem he (In Facebook) don't understand me.and i can't tele them.can you try to contact
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Post by Cfs or so on Aug 17, 2018 15:55:05 GMT
Omar... how can you know it gets worse? According to your own messages you also have cfs ... how do you know it isn’t your cfs that gets worse? You have the register to get answers and to provide your story ! I was asked to join the administration of this page which wasn’t made of me and I really don’t care 1% to answer such questions and to waste my time Am here only to help patients from my experience wich was painful , thankfully am doing good on ARV treatment and I can leave and live my life but am here to stand with people who can to be helped but I can see why did the admin closed the old page Because of such people I was a registered member at the old forum and was dealing with this sheiz for years. Actually the best thing that happened was this new forum. Seeing a very social forum go (unknown std) and being replaced by this dictatorship forum... its going the same way as the cfs forum. If you don’t fit our symptoms or say things we don’t like we will delete your posts... instead of being a fallback for people who are worried about their health it became a none important group. As for me... I workout 5 to 6 days a week, take some supplements feel healthy again. And as a bonus after 6 months I look ripped! Well I wish you all the best!
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Post by disucks on Aug 17, 2018 21:49:13 GMT
You have the register to get answers and to provide your story ! I was asked to join the administration of this page which wasn’t made of me and I really don’t care 1% to answer such questions and to waste my time Am here only to help patients from my experience wich was painful , thankfully am doing good on ARV treatment and I can leave and live my life but am here to stand with people who can to be helped but I can see why did the admin closed the old page Because of such people I was a registered member at the old forum and was dealing with this sheiz for years. Actually the best thing that happened was this new forum. Seeing a very social forum go (unknown std) and being replaced by this dictatorship forum... its going the same way as the cfs forum. If you don’t fit our symptoms or say things we don’t like we will delete your posts... instead of being a fallback for people who are worried about their health it became a none important group. As for me... I workout 5 to 6 days a week, take some supplements feel healthy again. And as a bonus after 6 months I look ripped! Well I wish you all the best! [be I don’t know who you are but great post!! I see they deleted my last two posts. Glad to hear you are doing better. I am close to two years in and while I still deal with a few minor symptoms I feel much better and refuse to believe that everyone will take a turn for the worse after 3 years. EVERYBODY is different. I am thankful for the old forum because I was able to get some valuable information from members who found treatments that actually helped. I have also found treatments that helped and even though there are people who want to discount what we are saying there are those who you will never know that we’re able to find something useful from what worked for us and others. I have a profile on Phoenix Rising and found the dictator like moderators to actually hurt progress not help it. There is a difference between weeding out the crazies and silencing people with a different opinion. I expect this post to be censored as well! Good luck to whoever is left here.
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Post by Get help on Aug 17, 2018 23:11:36 GMT
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Post by ashyam86343 on Aug 18, 2018 5:18:46 GMT
Hey Omar. I know you are greater than 5yrs, can you tell me what kind of issues you have now ? I am feeling better now, occassional mouth ulcers last for a week and goes. According to my naturopath if my stomach & stool is well. there is no issues i am also on same opinion. can you elaborate yours. Provid your story and symptoms development you had and still have please Hi Omar, I done several times explaining the symptoms of mine in old forum. Infected in Apr 2016. Protected vaginal & unprotected oral with thailand professional. In 2 weeks painless diarhea which i never faced for a week same time throat infection accompanied with mild fever. after a week diarhea gone but extended week for throat infection. Later more symptoms like hand numbness during sleep, leg luscle pain, joint tuck sound, night sweat, mild fever, oral ulcers, burning lips, skin rashes, puss in belly, yeast infection, loose stools, weight reduced by 10kg, lost muscles. Visited 3 GI, 2 General, 4 Urologist, 2 country level special infection specialist. Tested 6 times until 10months, all negative. this all happened in 1 yr, now i have visible nerves, aged skin look in 38yrs, son with Autism, for wife irregular periods, daughter with chronic cough and sneeze many more. But i see we are improving than before with herbal treatments. I see the permanent symptoms are also fading... i am feeling healthier than 1.5 year before. gained my weight & muscles back. Now you tell me, what are the symptoms you are facing after 5yrs, what ARV treatment you are doing.
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Post by moreattention333 on Aug 18, 2018 9:49:43 GMT
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Post by omar2011 on Aug 18, 2018 12:58:42 GMT
Provid your story and symptoms development you had and still have please Hi Omar, I done several times explaining the symptoms of mine in old forum. Infected in Apr 2016. Protected vaginal & unprotected oral with thailand professional. In 2 weeks painless diarhea which i never faced for a week same time throat infection accompanied with mild fever. after a week diarhea gone but extended week for throat infection. Later more symptoms like hand numbness during sleep, leg luscle pain, joint tuck sound, night sweat, mild fever, oral ulcers, burning lips, skin rashes, puss in belly, yeast infection, loose stools, weight reduced by 10kg, lost muscles. Visited 3 GI, 2 General, 4 Urologist, 2 country level special infection specialist. Tested 6 times until 10months, all negative. this all happened in 1 yr, now i have visible nerves, aged skin look in 38yrs, son with Autism, for wife irregular periods, daughter with chronic cough and sneeze many more. But i see we are improving than before with herbal treatments. I see the permanent symptoms are also fading... i am feeling healthier than 1.5 year before. gained my weight & muscles back. Now you tell me, what are the symptoms you are facing after 5yrs, what ARV treatment you are doing. Your symptoms were not sever in the beginning, I saw cases like you , you might live a good life with having a good quality of living like a friend of mine did ! He is a gym guy which wa infected from me then he developed the symptoms I had but the severity was 10% of what I had , he got over it after 2-3 months and he became 95% healthy at one year Now he lives with no symptoms mostly , but he have Rheumatoid like symptoms and when he is sick his lymph nodes inflammation is bad and he mainly have gut issues flares too wich he use detoxing and healthy food to get over it . I hope you are one of those people
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Post by omar2011 on Aug 18, 2018 13:00:51 GMT
Most patients with this disease didn’t have any issues with cd4 account , Even Chinese old and new patients tests didn’t show that Some may have a prior problems they didn’t know about but for the majority it’s not the issue
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Post by moreattention333 on Aug 18, 2018 13:47:58 GMT
Most patients with this disease didn’t have any issues with cd4 account , Even Chinese old and new patients tests didn’t show that Some may have a prior problems they didn’t know about but for the majority it’s not the issue Ok.we keep on with virus study.and it's the time for aperiomics to show their test result.it said 「"Our lab has been working on a new RNA protocol. A test sample has been spiked with RNA viruses and sequenced. We will be getting the data back this week. If all goes well, we will be re-running the newest UMV sample received.」。 And no news for now.should we find another lab??.as old forum says many chinese Patient thought it caused By a virus vaccine .the news reported it had people test the vaccine in chine. We don't want to guess what it is.only virus job can make it clear.and we don't believe it's hard to find a virus which can makes cd4 cell down in the time.i remember aperiomics complain the sample we sent were in bad quality.so we'd better get there to hand sample.
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Post by omar2011 on Aug 18, 2018 17:45:19 GMT
Most patients with this disease didn’t have any issues with cd4 account , Even Chinese old and new patients tests didn’t show that Some may have a prior problems they didn’t know about but for the majority it’s not the issue Ok.we keep on with virus study.and it's the time for aperiomics to show their test result.it said 「"Our lab has been working on a new RNA protocol. A test sample has been spiked with RNA viruses and sequenced. We will be getting the data back this week. If all goes well, we will be re-running the newest UMV sample received.」。 And no news for now.should we find another lab??.as old forum says many chinese Patient thought it caused By a virus vaccine .the news reported it had people test the vaccine in chine. We don't want to guess what it is.only virus job can make it clear.and we don't believe it's hard to find a virus which can makes cd4 cell down in the time.i remember aperiomics complain the sample we sent were in bad quality.so we'd better get there to hand sample. So your lab is doing sequencing and you will get results in one week ! Keep us updated
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Post by moreattention333 on Aug 19, 2018 1:29:12 GMT
Ok.we keep on with virus study.and it's the time for aperiomics to show their test result.it said 「"Our lab has been working on a new RNA protocol. A test sample has been spiked with RNA viruses and sequenced. We will be getting the data back this week. If all goes well, we will be re-running the newest UMV sample received.」。 And no news for now.should we find another lab??.as old forum says many chinese Patient thought it caused By a virus vaccine .the news reported it had people test the vaccine in chine. We don't want to guess what it is.only virus job can make it clear.and we don't believe it's hard to find a virus which can makes cd4 cell down in the time.i remember aperiomics complain the sample we sent were in bad quality.so we'd better get there to hand sample. So your lab is doing sequencing and you will get results in one week ! Keep us updated Not our lab.it is aperiomics the old forum contact.we now only can wait for them.we should find another one to find the virus
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Post by moderator on Aug 19, 2018 14:26:17 GMT
Hi Bon, you can advertise your forum or any other useful resource no issues, but please stop spamming. We are looking into changing the URL, any other comments or suggesting pertaining to forum itself can be posted here - uidf.boards.net/thread/11/forum-feedback-thread. This forum is moderated by volunteers and we would rather spend our time on something more productive then deleting your triple posts. This forum will stay up until there is a need for it and until there are people willing to maintain it. Not many people know about it now, but this should change after we change URL and let other message boards know about our existence. If you have a team and think you can do a better job - do it, I'd be happy for not having to do this at all and so would be Omar, but we also want for there to be a good place for people like us to talk about our condition and for the work that was started on the old forum to continue and I really doubt that creating multiple forums now is of much help.
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