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Post by lior30 on Aug 19, 2018 22:02:33 GMT
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Post by Bon on Aug 20, 2018 1:52:25 GMT
Hi Bon, you can advertise your forum or any other useful resource no issues, but please stop spamming. We are looking into changing the URL, any other comments or suggesting pertaining to forum itself can be posted here - uidf.boards.net/thread/11/forum-feedback-thread. This forum is moderated by volunteers and we would rather spend our time on something more productive then deleting your triple posts. This forum will stay up until there is a need for it and until there are people willing to maintain it. Not many people know about it now, but this should change after we change URL and let other message boards know about our existence. If you have a team and think you can do a better job - do it, I'd be happy for not having to do this at all and so would be Omar, but we also want for there to be a good place for people like us to talk about our condition and for the work that was started on the old forum to continue and I really doubt that creating multiple forums now is of much help. Mystery Moderator, I’m not spamming. I’ve been following this forum fairly regularly since the other forum was taken down by Mark. You or Omar or whoever have been deleting valid posts from various people. To the point that it is mostly Omar conversing with one other person. Yes I will be contacting as many old members as possible to find a place we can all meet without censorship. There is a difference between weeding out the crazy people and deleting posts that you don’t agree with. So you can call it spam if you like but it would only have been posted once if it wasn’t deleted. People are free to chime in at as many places as they wish. Nothing keeping them from checking in on several sites. Not knocking what you are trying to do just don’t want what happened before to happen again. Bon
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Post by moreattention333 on Aug 20, 2018 3:51:08 GMT
Hi Bon, you can advertise your forum or any other useful resource no issues, but please stop spamming. We are looking into changing the URL, any other comments or suggesting pertaining to forum itself can be posted here - uidf.boards.net/thread/11/forum-feedback-thread. This forum is moderated by volunteers and we would rather spend our time on something more productive then deleting your triple posts. This forum will stay up until there is a need for it and until there are people willing to maintain it. Not many people know about it now, but this should change after we change URL and let other message boards know about our existence. If you have a team and think you can do a better job - do it, I'd be happy for not having to do this at all and so would be Omar, but we also want for there to be a good place for people like us to talk about our condition and for the work that was started on the old forum to continue and I really doubt that creating multiple forums now is of much help. Mystery Moderator, I’m not spamming. I’ve been following this forum fairly regularly since the other forum was taken down by Mark. You or Omar or whoever have been deleting valid posts from various people. To the point that it is mostly Omar conversing with one other person. Yes I will be contacting as many old members as possible to find a place we can all meet without censorship. There is a difference between weeding out the crazy people and deleting posts that you don’t agree with. So you can call it spam if you like but it would only have been posted once if it wasn’t deleted. People are free to chime in at as many places as they wish. Nothing keeping them from checking in on several sites. Not knocking what you are trying to do just don’t want what happened before to happen again. Bon
ageee with Bon
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Post by moreattention333 on Aug 20, 2018 4:53:26 GMT
they didn't find the virus like ape did today。so what they said is useless. and it surely attack T cell. that article is written by Associated Press. today this disease happen not only asia not only 50years. any people any age can get it. so is there any body can contact Associated Press? and talk about it? Associated Press have notice the disease。that’s the article value.
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Post by omar2011 on Aug 20, 2018 7:17:05 GMT
Hi Bon, you can advertise your forum or any other useful resource no issues, but please stop spamming. We are looking into changing the URL, any other comments or suggesting pertaining to forum itself can be posted here - uidf.boards.net/thread/11/forum-feedback-thread. This forum is moderated by volunteers and we would rather spend our time on something more productive then deleting your triple posts. This forum will stay up until there is a need for it and until there are people willing to maintain it. Not many people know about it now, but this should change after we change URL and let other message boards know about our existence. If you have a team and think you can do a better job - do it, I'd be happy for not having to do this at all and so would be Omar, but we also want for there to be a good place for people like us to talk about our condition and for the work that was started on the old forum to continue and I really doubt that creating multiple forums now is of much help. Mystery Moderator, I’m not spamming. I’ve been following this forum fairly regularly since the other forum was taken down by Mark. You or Omar or whoever have been deleting valid posts from various people. To the point that it is mostly Omar conversing with one other person. Yes I will be contacting as many old members as possible to find a place we can all meet without censorship. There is a difference between weeding out the crazy people and deleting posts that you don’t agree with. So you can call it spam if you like but it would only have been posted once if it wasn’t deleted. People are free to chime in at as many places as they wish. Nothing keeping them from checking in on several sites. Not knocking what you are trying to do just don’t want what happened before to happen again. Bon Do you know the difference between a dictator and a person making a rules ? This fourm didn’t and won’t stop people of coming with there theories what ever is it except what were tested and found that it wasn’t the cause of our pain like hiv , htlv syphlis and other known infections , leaving every new member taking us to the scratch to start all over everything will just make more pain And would take the poor people time and faith of better tomorrow , when we are asked questions about other admins names ! Or some people come here to call other people names it’s not democracy to leave them all around running all over the place and ! When we are trying to change the page name to make it easy for other patients to find us and we are doing our best and we are just asking for little more time and some non registered members keep posting a new pages and it seems that there are many of you now this means that we are loosing the group members that others sees it as there last hope ! This is not a matter of democracy or not this is a fourm organizing or We could just close the non members ability of writing here but that’s not the case Last, I didn’t want to be a part of this but an old friend asked for Regards
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Post by ashyam86343 on Aug 20, 2018 7:54:46 GMT
Hi Omar, I done several times explaining the symptoms of mine in old forum. Your symptoms were not sever in the beginning, I saw cases like you , you might live a good life with having a good quality of living like a friend of mine did ! He is a gym guy which wa infected from me then he developed the symptoms I had but the severity was 10% of what I had , he got over it after 2-3 months and he became 95% healthy at one year Now he lives with no symptoms mostly , but he have Rheumatoid like symptoms and when he is sick his lymph nodes inflammation is bad and he mainly have gut issues flares too wich he use detoxing and healthy food to get over it . I hope you are one of those people Hi Omar, Glad to hear, but i dont think i am different from others interms of infection. Probably the herbal treatment is helping us, which i strongly feel. Anyway, you missed to update about you after 5yrs issue.. ?
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Post by omar2011 on Aug 20, 2018 10:47:56 GMT
Your symptoms were not sever in the beginning, I saw cases like you , you might live a good life with having a good quality of living like a friend of mine did ! He is a gym guy which wa infected from me then he developed the symptoms I had but the severity was 10% of what I had , he got over it after 2-3 months and he became 95% healthy at one year Now he lives with no symptoms mostly , but he have Rheumatoid like symptoms and when he is sick his lymph nodes inflammation is bad and he mainly have gut issues flares too wich he use detoxing and healthy food to get over it . I hope you are one of those people Hi Omar, Glad to hear, but i dont think i am different from others interms of infection. Probably the herbal treatment is helping us, which i strongly feel. Anyway, you missed to update about you after 5yrs issue.. ? I didn’t say the infection is different but the severity might be while we don’t know in reality who here have the same thing and who doesn’t but lots assume we all have the same thing Please tell me what kind of herbal treatment you are taking About the five years issue , after the fifth year for me and other patients the pain type and symptoms become different Neurological problems get worse Gut issues become more disturbing New Allergies start to develop Skin infections get worse ( fungal and bacterial ) Fatigue and pain get worse too I did devlop other issues but those stuff are the main for old patients
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Post by Bon on Aug 20, 2018 15:20:22 GMT
Mystery Moderator, I’m not spamming. I’ve been following this forum fairly regularly since the other forum was taken down by Mark. You or Omar or whoever have been deleting valid posts from various people. To the point that it is mostly Omar conversing with one other person. Yes I will be contacting as many old members as possible to find a place we can all meet without censorship. There is a difference between weeding out the crazy people and deleting posts that you don’t agree with. So you can call it spam if you like but it would only have been posted once if it wasn’t deleted. People are free to chime in at as many places as they wish. Nothing keeping them from checking in on several sites. Not knocking what you are trying to do just don’t want what happened before to happen again. Bon Do you know the difference between a dictator and a person making a rules ? This fourm didn’t and won’t stop people of coming with there theories what ever is it except what were tested and found that it wasn’t the cause of our pain like hiv , htlv syphlis and other known infections , leaving every new member taking us to the scratch to start all over everything will just make more pain And would take the poor people time and faith of better tomorrow , when we are asked questions about other admins names ! Or some people come here to call other people names it’s not democracy to leave them all around running all over the place and ! When we are trying to change the page name to make it easy for other patients to find us and we are doing our best and we are just asking for little more time and some non registered members keep posting a new pages and it seems that there are many of you now this means that we are loosing the group members that others sees it as there last hope ! This is not a matter of democracy or not this is a fourm organizing or We could just close the non members ability of writing here but that’s not the case Last, I didn’t want to be a part of this but an old friend asked for Regards I’m not here to debate you Omar. You left the other forum several times saying you weren’t going to return because you were frustrated when someone had a different view from you. I think you mean well just don’t think you are moderator material because of that. I don’t think people were wanting to know his actual name but weather or not he was an old forum member and if so, what was his screen name so people know who they are dealing with. Reality is you only have a hand full of people that migrated and from my observations you’ve already ran a few off. That’s why I was letting people know about the page I set up last year when the forum was taken down. Because this page looks to be a dead horse! unknownstdhelp.freeforums.net/thread/3/unknown-std-mystery-illness
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Post by moreattention333 on Aug 20, 2018 16:46:51 GMT
Do you know the difference between a dictator and a person making a rules ? This fourm didn’t and won’t stop people of coming with there theories what ever is it except what were tested and found that it wasn’t the cause of our pain like hiv , htlv syphlis and other known infections , leaving every new member taking us to the scratch to start all over everything will just make more pain And would take the poor people time and faith of better tomorrow , when we are asked questions about other admins names ! Or some people come here to call other people names it’s not democracy to leave them all around running all over the place and ! When we are trying to change the page name to make it easy for other patients to find us and we are doing our best and we are just asking for little more time and some non registered members keep posting a new pages and it seems that there are many of you now this means that we are loosing the group members that others sees it as there last hope ! This is not a matter of democracy or not this is a fourm organizing or We could just close the non members ability of writing here but that’s not the case Last, I didn’t want to be a part of this but an old friend asked for Regards I’m not here to debate you Omar. You left the other forum several times saying you weren’t going to return because you were frustrated when someone had a different view from you. I think you mean well just don’t think you are moderator material because of that. I don’t think people were wanting to know his actual name but weather or not he was an old forum member and if so, what was his screen name so people know who they are dealing with. Reality is you only have a hand full of people that migrated and from my observations you’ve already ran a few off. That’s why I was letting people know about the page I set up last year when the forum was taken down. Because this page looks to be a dead horse! unknownstdhelp.freeforums.net/thread/3/unknown-std-mystery-illnessI have mark that web
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Post by omar2011 on Aug 20, 2018 17:14:44 GMT
Do you know the difference between a dictator and a person making a rules ? This fourm didn’t and won’t stop people of coming with there theories what ever is it except what were tested and found that it wasn’t the cause of our pain like hiv , htlv syphlis and other known infections , leaving every new member taking us to the scratch to start all over everything will just make more pain And would take the poor people time and faith of better tomorrow , when we are asked questions about other admins names ! Or some people come here to call other people names it’s not democracy to leave them all around running all over the place and ! When we are trying to change the page name to make it easy for other patients to find us and we are doing our best and we are just asking for little more time and some non registered members keep posting a new pages and it seems that there are many of you now this means that we are loosing the group members that others sees it as there last hope ! This is not a matter of democracy or not this is a fourm organizing or We could just close the non members ability of writing here but that’s not the case Last, I didn’t want to be a part of this but an old friend asked for Regards I’m not here to debate you Omar. You left the other forum several times saying you weren’t going to return because you were frustrated when someone had a different view from you. I think you mean well just don’t think you are moderator material because of that. I don’t think people were wanting to know his actual name but weather or not he was an old forum member and if so, what was his screen name so people know who they are dealing with. Reality is you only have a hand full of people that migrated and from my observations you’ve already ran a few off. That’s why I was letting people know about the page I set up last year when the forum was taken down. Because this page looks to be a dead horse! unknownstdhelp.freeforums.net/thread/3/unknown-std-mystery-illness Am doing good in my life and I want to help people and I don’t have to waste my time believe me Btw there is only 2-3 old patients here every one left Am not going to deal with this again so am not deleting this Please don’t post any thing more
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Post by ashyam86343 on Aug 21, 2018 5:02:20 GMT
Am doing good in my life and I want to help people and I don’t have to waste my time believe me Btw there is only 2-3 old patients here every one left Am not going to deal with this again so am not deleting this Please don’t post any thing more Another best way of handling the posts are "ignoring" them .
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Post by omar2011 on Aug 21, 2018 10:58:08 GMT
In the next month I will add pleaqunil to my treatment as a trail !
Then I might change ARV pills am taking by adding one more component
When I start my plequnil you would find it on the treatment page
I hope others can share there treatment trials too there
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Post by Hope for us all on Aug 22, 2018 16:55:40 GMT
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Post by lior30 on Aug 22, 2018 21:00:14 GMT
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Post by moderator on Aug 22, 2018 22:12:14 GMT
Bon, Sorry, I did not have time to check in for a while. I missed any questions that might have been directed at me and deleted, but it looks like we both know that Omar did not exactly have any genuinely bad intentions with anything he did as a moderator. Where I stand on moderation, and I told this to Omar before we created this board, - it should be limited to deleting spam and stupid comments like threats or suicidal rants. My only intention was to create multiple threads or sections and keep it clean from garbage. The only thing I deleted were =copies= of your post about your new forum. I agree that Omar’s style is not correct if we want to have a healthy discussion. I don't know exactly what happened and I'm not justifying his actions, but we do not have forum rules, so maybe we need some. We could also use another moderator, so if you are not too angry and all, and if you wanted to volunteer yourself would be of some help. Omar, I strongly don't agree with this - "Please don’t post anything more." And I strongly agree with this - "Another best way of handling the posts are "ignoring" them ." I will draft out some basic forum rules, then post them for member review and we should try to stick to them for moderation guidelines. I created yet another forum, this time with a better URL, here it is - unknown-std-id.boards.net. As soon as we settle the rules and recreate the threads we can move there. Finally – if anyone has any better ideas – put them here so I don’t waste my time moving stuff to new URL. Bon, we don’t mind moving to your forum either, except we don’t see a reason to do so now and we also don’t know who you are, so PM me or Omar if you have any questions. I definitely do not want to be monopolizing anything and I know neither does Omar, we just want a clean forum that works since the old one closed down. Sorry if our implementation is not ideal, - if anyone has any other comments or suggestions please write them here uidf.boards.net/thread/11/forum-feedback-thread
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